Celine Dion is opening up on her struggling journey with stiff-person syndrome and how difficult it becomes for her to keep up with her singing. The singing empress, who has built a career since more than four decades described the experience as similar to someone strangling you, revealing that she has broken ribs from spasms.
Dion was first diagnosed with the syndrome in 2022 and has been dealing with it since. Here’s everything she has to say about her journey and how she tries to deal with it.
Celine Dion Reveals What Singing With Stiff Person Syndrome Is Like
Singer Celine Dion discussed the symptoms of Stiff Person Syndrome in a recent NBC interview with Hoda Kotb, saying, “It feels like someone is pushing your larynx, pharynx, this way,” pressing her fingers on her throat before adding, “It’s like you’re talking like that, and you cannot go higher or lower.”
She continued, “It feels like if I point my feet, it will stay in [that position]. Or, if I cook — because I love to cook — my fingers, my hands will get in position. It’s cramping, but it’s like in a position of like, you cannot unlock them.” She also said that she had broken ribs at one point.
‘I Am: Celine Dion,‘ a new documentary for Amazon MGM, has Dion discussing her health struggles in detail. It will be available for streaming on Prime Video. from June 25th.
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Celine Dion’s Journey With Stiff Person Syndrome
Dion was diagnosed with Stiff Person Syndrome in December 2022, which is a rare neurological condition that results in growing muscle stiffness. The singer has been mostly out of the spotlight and has been unable to tour due to the disorder, yet in February she made an unexpected cameo at the Grammy Awards and received a standing ovation.
Talking about the disorder, she has also said, “While we’re still learning about this rare condition, we now know this is what’s been causing all of the spasms that I’ve been having. Unfortunately, these spasms affect every aspect of my daily life, sometimes causing difficulties when I walk and not allowing me to use my vocal cords to sing the way I’m used to.”
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